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She adds that most of the arguments they have these days are about normal things like playing their music too loudly. I just say ‘When we go to see the cardiologist, we’ll ask him.’ It’s a lot easier that way.” I don’t argue with them about it anymore. “They would both like to do sport and Callum desperately wants to join the football team, but he can’t. “It has been hard when we haven’t been able to let them do things,” says Jeanette. There have been a few arguments along the way. The condition means that their grandchildren haven’t been able to do all the same things as others their age competitive sport and big fairground rides are out of bounds, for example. You just hope and pray for the best.” Growing pains Richard says: “When we were first told about the long QT syndrome, we thought there must be a cure, maybe a heart transplant or something, but there is no cure. Callum has also had an ICD fitted to protect him from dying suddenly. This is a device that gives a small electrical shock to return the heart rhythm to normal. She was unconscious in hospital for eight hours and we didn’t know whether she’d be OK.”īecky had a second cardiac arrest when she was six and, soon after, had an implantable cardioverter defibrillator (ICD) fitted. I was terrified, but there was no one else to help. It was like what had happened to her mum was happening again. In the car on the way, she stopped breathing. “I rang the hospital and they said to bring her in. “Becky came home from school one day and said she didn’t feel well,” says Jeanette. In some cases, LQTS can cause sudden death.Īt the age of four, Becky had a cardiac arrest and had to be resuscitated by Jeanette, now 64, who had learnt emergency life support skills at work. Some people experience no symptoms at all but others may faint or collapse. LQTS causes an electrical disturbance to the heart and puts those affected at risk of having a dangerous heart rhythm. Within weeks of Jayne’s death, Becky and Callum tested positive for Long QT syndrome (LQTS), the inherited heart condition that led to their mother’s death. But I wouldn’t have walked away from them.” Inherited heart condition “We found it difficult dealing with it on our own, bringing up the grandchildren when our family had been destroyed. “Our whole family fell apart,” says Richard, 58, from Hengoed, near Caerphilly. Tragically, two years after Jayne’s death, Darren also died and Jeanette and Richard became permanent guardians of the two orphaned children. We found it difficult dealing with it on our own, bringing up the grandchildren when our family had been destroyed

While their son Darren kept vigil at his fiancée’s bedside, Jeanette and Richard stepped in to help look after their granddaughter Becky, just six weeks old, and grandson Callum, 14 months. She survived, but was left with brain damage and spent the remaining two years of her life in a nursing home. Their lives changed forever on 14 June 1998, the day that their future daughter-in-law Jayne had a cardiac arrest. Love, loss and sacrifice are words that Jeanette and Richard Rosser understand better than most. The phrase fell out of regular use for a while, then became popular once again as part of the tagline for LA Confidential in 1997: ‘off the record, on the QT and very hush-hush.Grandparents Jeanette and Richard Rosser talk to Sarah Brealey about the challenges of raising two children who both have an inherited heart condition. George Moore’s A Mummer’s Wife seems to be the first place that the phrase appears in print. However, this has been disputed as he provided no evidence for the claim.īack in the US, the Cambridge Jeffersonian of Ohio is reported to have published a vaudeville song from 1879 with the line: ‘She tipples on the strict QT’. Hendrickson says that ‘on the QT’ comes from a British ballad in 1870. The British claim comes via Robert Hendrickson, in The Facts on File Encyclopedia of Word and Phrase Origins. US wordsmiths cite that country’s love of abbreviations, as evidenced by OK, PDQ and others, as evidence that ‘on the QT’ fell into this tradition. However, both the US and the UK claim first ownership of this phrase. Most people agree that it’s simply an abbreviation of ‘quiet’, albeit a strange one, using the first and last letters. Opinions are divided on the origin of the expression ‘on the QT’, a slang expression which indicates that the subject under discussion is confidential.